Please read the user agreement posted in the lower left corner and click on all the blue links to download copies of the original documents that support any statements in this story.

The natural mother was very saddened to learn that parents of FD children home treatment management has not changed in over 20 years.

In 1983, she had her well-trained registered nursing staff assist her in compiling a care manual. The name of the manual is "The Planned Approach to Nursing Management for Dysautonomia in the Home and School Environment© 1983, Schwartz, Library of Congress.

"The Planned Approach to Nursing Management for Dysautonomia in the Home and School Environment© 1983, Schwartz, Library of Congress.

To read portions of the book click on the links below:

Coming soon Stress Management

Respiratory Arrest in FD

Page 2 of Arrest

CPR in FD

Please read the chapters above from the manual on preventing and treating respiratory arrest. All of the information in this book was written by N.Y.S. registered nurses, many with Masters Degrees, many of them Nurse Practioners all dedicated to caring for Suzie.

To read Suzie's first hospital admission under the care of Dr. Axelrod, please click here.

Email us and please come forward with your stories, all names will remain confidential. For all parents of children with any form of dysautonomia; there is life before, during and after dysautonomia. Never give up !